Contact a Family - For Families With Disabled Children
Contact A Family - For Families With Disabled Children
Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. For more information, please visit www.cafamily.org.uk
Rare Disorders - Spina Bifida and Hydrocephalus // November 2009
A parent's experience of having a child with spina bifida and hydrocephalus.
Rare Disorders - Proximal Focal Femoral Deficiency // October 2009
Proximal Focal Femoral Deficiency is an uncommon condition which occurs before a baby is born. The condition affects the bones in the lower limbs including the hip, knee and thigh bones . This podcast is a mother’s experience of having a son with the ...
Parent Stories - Pitt Hopkins Syndrome // August 2009
A
mother and father discuss their experience of the process of diagnosis for their
child with Pitt Hopkins syndrome. Pitt Hopkins is a rare genetic condition characterised by severe learning disability, breathing
abnormalities and characteristic ...
Parent Stories - Pitt Hopkins Syndrome // August 2009
A
mother and father discuss their experience of the process of diagnosis for their
child with Pitt Hopkins syndrome. Pitt Hopkins is a rare genetic condition characterised by severe learning disability, breathing
abnormalities and characteristic ...
Parent Stories - Having a child with an undiagnosed condition and challenging behaviour // 12 ...
Many families have children with special needs whose medical condition is often
never diagnosed. This can make it difficult for the family to access
information, support and services. Challenging behaviourscan be a feature of many different conditions ...
Parent Stories - Having a child with an undiagnosed condition and challenging behaviour // 12 ...
Many families have children with special needs whose medical condition is often
never diagnosed. This can make it difficult for the family to access
information, support and services. Challenging behaviourscan be a feature of many different conditions ...
Benefits - Employment and Support Allowance (ESA) // August 2009
Employment and Support Allowance came into effect in the UK at the end of 2008. In this podcast one of Contact a Family's advisers provides more information about this benefit.
Benefits - Employment and Support Allowance (ESA) // August 2009
Employment and Support Allowance came into effect in the UK at the end of 2008. In this podcast one of Contact a Family's advisers provides more information about this benefit.
Rare Disorders - Sturge-Weber Syndrome
Sturge-Weber syndrome (SWS) is a congenital disorder involving the brain, skin and eyes.
There is a facial birth mark (port wine stain), a layer of blood vessels over the covering of the brain (venous angioma of the leptomeninges) and there may be an ...
Rare Disorders - Sturge-Weber Syndrome
Sturge-Weber syndrome (SWS) is a congenital disorder involving the brain, skin and eyes.
There is a facial birth mark (port wine stain), a layer of blood vessels over the covering of the brain (venous angioma of the leptomeninges) and there may be an ...
Rare Disorders - Bladder Exstrophy and Epispadias
Bladder Exstrophy
-
The exstrophy epispadias complex is a spectrum of disorders ranging in severity from epispadias through bladder exstrophy to cloacal exstrophy. All three and their variants are rare congenital abnormalities, which affects boys more ...
Rare Disorders - Bladder Exstrophy and Epispadias
Bladder Exstrophy
-
The exstrophy epispadias complex is a spectrum of disorders ranging in severity from epispadias through bladder exstrophy to cloacal exstrophy. All three and their variants are rare congenital abnormalities, which affects boys more ...
Rare Disorders - TAR Syndrome (Thrombocytopenia and Absent Radius)
TAR Syndrome (Thrombocytopenia and Absent Radius)
In Thrombocytopenia and Absent Radius there are low platelets and absence of the radius on both sides (bilaterally). The radius and the ulna are the two bones in the forearm. The radius is the bone that ...
Rare Disorders - TAR Syndrome (Thrombocytopenia and Absent Radius)
TAR Syndrome (Thrombocytopenia and Absent Radius)
In Thrombocytopenia and Absent Radius there are low platelets and absence of the radius on both sides (bilaterally). The radius and the ulna are the two bones in the forearm. The radius is the bone that ...
Rare Disorders - TAR Syndrome (Thrombocytopenia and Absent Radius)
TAR Syndrome (Thrombocytopenia and Absent Radius)
In Thrombocytopenia and Absent Radius there are low platelets and absence of the radius on both sides (bilaterally). The radius and the ulna are the two bones in the forearm. The radius is the bone that ...
Parent Stories - 'Jamie' (Video)
Contact a Family called on parents to tell their story of raising
a disabled child by holding a national competition aiming to highlight the
many issues they face on a day-to-day basis. We picked 'Jamie' as one our runner-up winners - which ...
Parent Stories - 'Jamie' (Video)
Contact a Family called on parents to tell their story of raising
a disabled child by holding a national competition aiming to highlight the
many issues they face on a day-to-day basis. We picked 'Jamie' as one our runner-up winners - which tells the ...
Parent Stories - 'Fab Fin' (Video)
We called on parents to tell their story of raising a disabled child by holding national competition aiming to highlight the many issues they face on a day-to-day basis. We picked 'Fab Fin' as our grand prize winner. Enjoy!
Parent Stories - 'Fab Fin' (Video)
We called on parents to tell their story of raising a disabled child by holding national competition aiming to highlight the many issues they face on a day-to-day basis. We picked 'Fab Fin' as our grand prize winner. Enjoy!