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ALDE Public Hearing on Rare Diseases   May 15, 2008


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Description:
At the Hearing on Rare Diseases organised at the European Parliament, co-hosted by Fr d rique Ries and Jules Maaten, together with the European Organisation for Rare Diseases (EURORDIS), an overview will be given of the initiatives and activities taken in different Member States of the EU to commemorate the Rare Disease Day. Furthermore, the European Commission launched a Public Consultation on the Commission Communication on Rare Diseases in December 2007. The deadline to contribute to this exercise is 14 February 2008. At the Public Hearing, participants will have a preliminary feedback on the results of the consultation and an overview of the main challenges and priorities of the Rare Diseases Community in Europe. For more information: http://www.alde.eu/index.php?id=42&tx_ttnews[tt_news]=9293

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